BITTU YAKE HODE(WHY DID YOU LEAVE ME)

Sushmi, Today( on june 23rd) is the day you went into coma. I can no longer hear you say amma. But I will try to do justice for you by being with you as much as I can. Your dresses will remain the place they were. Your school bag which you made ready for going to school that unfatefull day is still in our bed room. Today I will ask you god to return my baby for me. It will take him one minute to do one miracle. My husband has gone to Bangalore on some work. I don't know how much I can improve her But one thing I know I will never give up. I know I cannot do this alone and we need lot of finances also. because these physiotherapy sections are becoming very costly. It is 300/hour. But physiotherapy is the most important one also. She is nowhere stiff. We make her sit and stand. we give streches. We give neck exercises, jaw exercises, we give auditory stimulations. Kanaka madam from speech has taught me oral exercises which improve her swallowing. She has taught me to give commands and to give eyetracking for toys. She tells me I have to take her out atleast once a week which I am doing. I am also asked to show photos of family members. Even that she was giving good response but now it has been diminidhed

LOOSE MOTION AND SORE BUMS

Sushmitha had severe loose motion. She passed watery stools almost 10 times a day. As a result her bum became very sore and reddish. We applied siloderma but still it worsened. Dr pushpa Kini put her on antibiotics sepmax. She passed urine so mom suggested till urination is there I need not worry. Sometimes I get very much worried for Sushmitha and the minute I open up with Dr Pushpa Kini she gives me correct solution to my problem. Same is the case with Anitha. They both understand me very well. I cannot do the stimulations. I bought a new mobile and it has memory card in it. I wish in Sushmitha's brain also if it was possible to bring her memories back by putting memory card. I sometimes get worried thinking what other difficulties future has in store for me. I know mom supports me by being in my house even though she is reluctant to personally supervise Sush. I don't know what i will do without her. Sushmitha is becoming older and the nurses who come to treat her feel it difficult to lift her.

SLEEPING EXCESSIVELY

Sushmitha is sleeping excessively these days. I am not able to give the stimulations. I feel very helpless. So photoseeing and giving commands I am not able to do from past three days. Upon that mummy keeps nagging servants for no reason at all. If only she had given me support. Nobody is happy at home. Servants threaten they leave the job. Mummy will not understand. She likes some people and supports them even if they are wrong. She doesn't like some people and she does not like anything they do. Our house keeper laxmi is very good in lifting the child and leaves aside her work to help Sushmitha but mummy does not like her. Atleast she can adjust for Sushmitha.

SUSHMITHA FALLS FROM CANE CHAIR

Physiotherapyst Pranay made her sit in the cane chair and while swinging round and round (for vestibular stimulation) the rope got cut and Sushmitha fell straight to the ground along with cane chair. Luckily nothing happened . Here mom nags much these days. So servant Laxmi wants to go home. Actually she is very good in house work and if i call her she will come immediately to help sushmitha. She is good in lifting sushmitha and good in physiotherapy also. I told mom I see one bucket which is half filled with water and while I see it half full she sees it half empty. Now if she goes on finding fault nobody is perfect. One minute she starts nagging and next minute she will be nicely talking but she will be talking so rudely i don't want to connect. I fee; very difficult to concentrate on sushitha at this stage