where do I begin, I must start from the very beginning before Sush ended up in coma.Her life that was filled with so much , how people loved her in karkala. She loved life , she was always laughing inspite of all the pain she had , medications she had to take, hsopitalizations. she went to school, she went to dance classes like other kids. She love eating bhel , she loved washing clothes with the maids, she sooooo loved animals.
She was born 1998 June 20th, a year after Deeksha was born. Deeksha is my niece that my sister had left in my care for a year, i loved her like my own. Looking after Deeksha I wanted a child of own..Anil was already grow up.
So sushmita , was born, she was so beautiful everyone said. She was 6 months when we noticed her knees twitched all the time and took her to the doctor. Thats the begining of my Journey.
She was diagnosed with having epilepsy. They call it fits in India.People thought it was contagious in India for some time. The endless trips to the hospital began , we started seeing different doctors and were always in some new hospital running a newer test.
My mother was always there with me helping me , as Sush would have seizures sometimes 20 times a day.. it went on like that until she was a year old. Then we hear about Dr P. She was the angel that God sent to me , well I did not think too much about it untill now. At the time she was for me the miracle Doc who helped my child stop having seizures. At least she would not have one that lasted a day.
Now and then she would have an attack in a month, or sometimes in a row in week. some times it would not come for about months. Sush continued growing like any other child with normal fits and excitement. She was slower than others. She had motor co ordination issues, she had learning disorders. but she loved what life enabled her to. She loved people instantly. She loved everyone including the maids that were hired to look after her.
She loved me and that still is the most beautiful thing that ever happened in my life. Her love filled my otherwise empty world. There was nothing in my life as my husband was too busy working and my son was caught up growing up.. sometimes I am guilty that I was never there for him as Sush needed so much hospitalizations.
He loved his sister too much, who would not?? she would call him Anil Anna( Anna is brother in konkani). She always wanted to people to love her. Moke madu she would ask us which meant I wanted a hug.
once my sister moved to US my parents moved with me as I needed help with Sush a lot.
Life was begining to Settle down, I joined Chethana School for kids with special needs. I though life had a new meaning for me now that there was something I could do to help other kids with Special needs. I helped the School collect funds, went to anyone that would donate money to the school. Even made my husband donate hefty amounts to school hoping some how helping others would help me too. Eventually I fell in love with those kids, between my Chethana and Sushmitha my life was going on as smooth as i thought life could be.
I was not content with life. I complained to God once a while, why did you take my sister so far away from me? she was my best friend, my mentor and my sister everything as I was to her.
We always hung out together, we were different than others. We never needed anyone else in life if we had each other for company. Then one day my sister moved to US. My life changed then but i had mom and I had you baby, I had you.
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