Tuesday, February 8, 2011
kANNU MUCCHU( CLOSE YOUR EYES) COMMAND OBEYING AND LOCKING LEFT LEG WHILE STANDING
Now when command give to close the eyes she is obeying. She is also nicely seeing photos of mine and husbands. Her swallowing is more better. sometimes 80 ml feed taken by mouth. when she starts coughing we stop. Hence teeth biting is reduced. But sometimes there are lot of involuntary movements. She sees outside sometimes. Neck control is also better. But today her head had slipped from the pillow and we saw only after much time. How it might have pained her. Once I took her near the school and while shifting I was about to fall. I didn't notice the gap between car' road and steps. Our driver Sandeep came rushing as if god sent and caught hold of Sushmitha. I don't know what I would have done if something had happened to Sushmitha. I would have forgiven myself. Of all the relationships I find my relationship with Sushmitha is the most beautifull. My husband just doesn't need me. Whenever I go to our bed room i hear him praising other women. My mother does not like my trying for Sushmitha. I think my janumada gelathi sister is busy. That leave only doctor Pushpa kini by my side. As long as she is there like god I will survive. Even physiotherapist Dr Watson is busy these days. He is the vice principal and he has also taken another case. But she was responding to him very nicely. Even the nurse Mallika who was giving commands to Sushmitha is leaving the job. You have no one but yourself.
Tuesday, November 30, 2010
DRINKING FROM STRAW AND MORE AWAKE
She is more aware of surroundings. Her vision is getting better. She can see eye level now. Before mostly she used to look down. She is drinking from straw now. Her response to sound has improved. Whenever the vehicles blow horn she turns her gaze to that direction and when the vehicles pass she follows them. Neck control also has improved. But on cognition level I feel there is deteroration. response to Amma nodu has gone down. Even Illi nodu response has gone down. It was my life line. Not that I love her any less if she does not.
Friday, October 29, 2010
More awareness of surroundings but respiratory problems.
She is more aware of surroundings. She sees vehicles on road. Any food is brought and kept on the stool she is aware. But now she has respiratory problems. Her respiratory rate is 60/minute and pulse rate is 120/minute. So I contacted Dr Pushpa Kini and she put on antibiotics Ceptum for seven days. She also prescribed deriphylline-150 mg twice for seven days which is broncho dilater. She also gives nice response to Dr Watson. She responds whenever he talks. She sometimes stops teethbiting and has heavy breathing. She mostly sees the room with her wide eyes. But response to Amma nodu(Look at mother) has gone down. It is very difficult to see her coughing. Once she vomited. Why God you are making her suffer more? Are you not satisfied with her suffering.What has my child done? I want to hold her in my lap like before.
Monday, September 20, 2010
SUSHMITHA RECOGNISES HER FRIENDS BY LOOKING AT THEM WHEN RESPECTIVE NAMES CALLED
On 12th of this month exactly one week before five of Sushmitha's friends came home. I just for the sake of talking I asked Sushmitha Look at Madvitha and she turned to look at Madvitha. Everybody was happy and I thought this is coincidence and I asked her to see Swathi and she looked then i asked her to see Priya and she did. Then I asked her to see Sangeetha and she looked. Then physiotherapyst Watson sir was about to come home for physiotherapy treatment. I told him about this. and he was interested and happy. Then I thought too many names might confuse her so I stuck to Madvitha and Swathi mallya and again two times she looked at them. in the meanwhile they asked where is Amma and she looked at me. By happiness knew no bounds. Next day I reported the matter to Dr Pushpa Kini and she was very happy for me.
Thursday, September 16, 2010
YOU ARE ALL WHAT i HAVE BABY
I feel nobody needs me. My husband keeps scolding and quarrelling for no reason at all. My mother keeps nagging whole day. I don't know what is my fault. before mum used to get angry with me because I used to go out to Chethana School to help the gods special children. My husband doesn't like anything I do. They are not trying to improve Sushmitha and they think simply i am troubling her. But how can I stop trying? I know my trying may not be what u want. i may be selfish. But you are all what I have baby. Nobody supports me. So I don't want to live in this world where always people find fault with me. You are all what I have baby, You are what I have and wish not to loose and if I loose you for some reason I wish that will be the end of my life.
Wednesday, September 8, 2010
FOLLOWING SIMPLE COMMANDS AND SUDDENLY FOR SOME DAYS LESS RESPONSIVE
Sushmitha seemed to follow some simple commands. Illi nodu-( look here) she follows most of the time. Look at mother also she does. Jeeb Dakayi she does. Open your mouth she has started following. open your mouth she sometimes does. Open your eyes sometimes she obeys. Lollipop nodu she looks. I feel she understands it is for eating. She sees it and sometimes follows it. But suddenly whe she started doing all this her sleep cycle got changed. She is sleepy during morning hours when she used to be most responsive. One look she looks at me when amma nodu command given I feel so happy and i don't want anything else in the world. I now have the strength for anything.
Sunday, August 29, 2010
SISTER TELLS ME TO SLOW DOWN
Today Anitha my sister called and told me that she had spoken to somebody about Sushmitha's condition and the person told her that today Sushmitha is alive only because I am holding on to her. And I want her to get better for my sake.But maybe this is not what she wants. Maybe she is too tired and wishes to take rest. She might have body pains also. In foriegn countries they just keep such patients under sedation. Sometimes her body may require rest and I should give that to her. Anitha says it doesn't mean that I should stop trying just give her minimal physiotheraphy and not overdo it. She says at this point of time most of the people give up and she is happy I am not. But I feel there are positive changes like look at your mother she turns her head and looks at me. Look here she turns to whowever calls. Opens her mouth on command. Shows her tongue on command. So I cannot give up at this stage. You are all I have baby. I will never let you go. The thought that you can recognise me as your mother is enough and this can keep me going for the rest of my life. Onde ondu sari kanna munde bare. Today you turned your head to look at me and i am happier today.
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