Friday, October 29, 2010

More awareness of surroundings but respiratory problems.

She is more aware of surroundings. She sees vehicles on road. Any food is brought and kept on the stool she is aware. But now she has respiratory problems. Her respiratory rate is 60/minute and pulse rate is 120/minute. So I contacted Dr Pushpa Kini and she put on antibiotics Ceptum for seven days. She also prescribed deriphylline-150 mg twice for seven days which is broncho dilater. She also gives nice response to Dr Watson. She responds whenever he talks. She sometimes stops teethbiting and has heavy breathing. She mostly sees the room with her wide eyes. But response to Amma nodu(Look at mother) has gone down. It is very difficult to see her coughing. Once she vomited. Why God you are making her suffer more? Are you not satisfied with her suffering.What has my child done? I want to hold her in my lap like before.

Monday, September 20, 2010

SUSHMITHA RECOGNISES HER FRIENDS BY LOOKING AT THEM WHEN RESPECTIVE NAMES CALLED

On 12th of this month exactly one week before five of Sushmitha's friends came home. I just for the sake of talking I asked Sushmitha Look at Madvitha and she turned to look at Madvitha. Everybody was happy and I thought this is coincidence and I asked her to see Swathi and she looked then i asked her to see Priya and she did. Then I asked her to see Sangeetha and she looked. Then physiotherapyst Watson sir was about to come home for physiotherapy treatment. I told him about this. and he was interested and happy. Then I thought too many names might confuse her so I stuck to Madvitha and Swathi mallya and again two times she looked at them. in the meanwhile they asked where is Amma and she looked at me. By happiness knew no bounds. Next day I reported the matter to Dr Pushpa Kini and she was very happy for me.

Thursday, September 16, 2010

YOU ARE ALL WHAT i HAVE BABY

I feel nobody needs me. My husband keeps scolding and quarrelling for no reason at all. My mother keeps nagging whole day. I don't know what is my fault. before mum used to get angry with me because I used to go out to Chethana School to help the gods special children. My husband doesn't like anything I do. They are not trying to improve Sushmitha and they think simply i am troubling her. But how can I stop trying? I know my trying may not be what u want. i may be selfish. But you are all what I have baby. Nobody supports me. So I don't want to live in this world where always people find fault with me. You are all what I have baby, You are what I have and wish not to loose and if I loose you for some reason I wish that will be the end of my life.

Wednesday, September 8, 2010

FOLLOWING SIMPLE COMMANDS AND SUDDENLY FOR SOME DAYS LESS RESPONSIVE

Sushmitha seemed to follow some simple commands. Illi nodu-( look here) she follows most of the time. Look at mother also she does. Jeeb Dakayi she does. Open your mouth she has started following. open your mouth she sometimes does. Open your eyes sometimes she obeys. Lollipop nodu she looks. I feel she understands it is for eating. She sees it and sometimes follows it. But suddenly whe she started doing all this her sleep cycle got changed. She is sleepy during morning hours when she used to be most responsive. One look she looks at me when amma nodu command given I feel so happy and i don't want anything else in the world. I now have the strength for anything.

Sunday, August 29, 2010

SISTER TELLS ME TO SLOW DOWN

Today Anitha my sister called and told me that she had spoken to somebody about Sushmitha's condition and the person told her that today Sushmitha is alive only because I am holding on to her. And I want her to get better for my sake.But maybe this is not what she wants. Maybe she is too tired and wishes to take rest. She might have body pains also. In foriegn countries they just keep such patients under sedation. Sometimes her body may require rest and I should give that to her. Anitha says it doesn't mean that I should stop trying just give her minimal physiotheraphy and not overdo it. She says at this point of time most of the people give up and she is happy I am not. But I feel there are positive changes like look at your mother she turns her head and looks at me. Look here she turns to whowever calls. Opens her mouth on command. Shows her tongue on command. So I cannot give up at this stage. You are all I have baby. I will never let you go. The thought that you can recognise me as your mother is enough and this can keep me going for the rest of my life. Onde ondu sari kanna munde bare. Today you turned your head to look at me and i am happier today.

Sunday, August 22, 2010

HUSBAND SAYS I HAVE TO ANSWER GOD

Sushmitha again is sleeping heavily. So I cannot give much stimulations. Anitha came from USA and she says there is certainly some change in her. There is some response coming but you cannot gueswsher level of perception. My husband says we are doing much physio so I am not giving her enough rest so I have to answer God. I don't mind answering him but let him first answer my question first. Why is punishing my innocent child? and my husband is not at all spending 5 minutes in a day with the child. She has so much pain in her body and she was moaning a lot 2 days back. I also fear that nursing physiotheraphy all these things are so costly whether I will be able to look after her in the future in the same way we are doing now. Sunila from speech taught me the importance of association and signature. Every person has a different signature. Similarly every person should identify themselves in differnt ways. Like she has a seperate way of touching patients like squeezing their hand and so the patient identifies her and another person can pinch her cheek so that she will know that it is that person. And in association she is thought to associate the spoon with food. First touching her mouth with spoon and giving command to open her mouth. Then giving her food so that when spoon is brought near her mouth she will know that food is coming. And she told me to give Sushmitha small commands like open ur mouth, See here(Illi nodi) which she is already doing and don't do this-like don't bite your teeth.I liked it. From morning I start stimulations and i don't take rest but I get constant scolding from mom if I am late for feed, from my husband for always stimulating her and from Watson sir because he thinks we are not waking her up and not stimulating her. It is becoming very difficult to wake her up these days. She sleeps all the time and my sister says I cannot do much about it.

Sunday, August 8, 2010

AMMA NODU(LOOK AT YOUR MOTHER) SHE LOOKS AT ME

Sushmitha's nurse Sushmitha and she turned to her direction and then she asked amma nodu she looked at me. I was very happy. She asked again and again she looked at me. Again next day also she obeyed command amma nodu. The next day she got up from sleep and laughed at me. I can spend my whole lifetime now happily. Her one smile has given lot of strength. I don't want anything anymore. After a long time I can sleep peacefully.